Discover the PURPOSE Studies community advisors whose leadership and expertise are pivotal in shaping global HIV prevention initiatives.

The Role of Community Advisory Boards in HIV Prevention

Community Advisory Boards (CABs) play a crucial role in guiding and shaping research initiatives, ensuring that studies are culturally sensitive, ethically sound, and effectively address the needs of the populations they serve. In the context of HIV prevention, CABs bring together diverse voices and expertise to enhance the design, implementation, and dissemination of research findings.

PURPOSE Studies: A Collaborative Approach

The PURPOSE (Preventing HIV by Uniting Community and Regional Efforts) Studies leverage the collective knowledge and experience of their Community Advisory Board to drive impactful HIV prevention strategies globally. These advisors engage at every stage of the research process—from study design and protocol development to implementation and post-study evaluation.

Enhancing Community Engagement

One of the primary functions of the CAB is to facilitate meaningful community engagement. Advisors provide insights into effective participant recruitment strategies, appropriate language use, and cultural considerations that are essential for executing large clinical trials. This ensures that the research is not only scientifically robust but also resonates with the communities involved.

Shaping Study Protocols

The expertise of CAB members is invaluable in shaping study protocols. Their input helps in identifying potential challenges, refining research methodologies, and ensuring that the studies are aligned with the real-world needs of the communities. This collaborative approach leads to more effective and sustainable HIV prevention interventions.

Meet Our Esteemed Community Advisors

Yvette Raphael

Yvette Raphael, Executive Director of Advocates for the Prevention of HIV in Africa, brings over 19 years of experience living with HIV. Her leadership in co-founding the Tshwaranang Care Center for People Living with HIV & AIDS (PLWHA) underscores her commitment to combating HIV stigma and improving healthcare access. Yvette’s global advocacy has been instrumental in shaping policies and education programs that empower young women and girls.

Teresia Otieno

As the Acting Director for ATHENA Network, Teresia Otieno is passionate about promoting HIV prevention strategies for women and girls. Her work in Kenya, including her role in the Beyond Zero Campaign, highlights her dedication to ending human rights violations and enhancing community health outcomes. Teresia’s mentorship across continents fosters the mobilizing power of women in HIV prevention efforts.

Saidy Brown

Born with HIV, Saidy Brown uses her platform on social media to educate and inspire others about living with HIV. Her participation in the South African AIDS Conference and her role in youth-led organizations like Y+ South Africa demonstrate her commitment to youth advocacy and HIV education.

Nombeko Mpongo

South African AIDS activist Nombeko Mpongo emphasizes the importance of empowered communities in adhering to HIV prevention methods. Her involvement with the Desmond Tutu HIV Centre reflects her dedication to authentic community engagement and ongoing education about HIV/AIDS.

Lillian Mworeko

With over two decades of experience, Lillian Mworeko advocates for women’s sexual and reproductive health and rights. Her leadership in the International Community of Women living with HIV Eastern Africa (ICWEA) and her participation in global advisory committees highlight her influence in shaping effective HIV prevention policies.

Margaret Happy

Margaret Happy, Executive Director of Advocacy for Quality Health Uganda, combines her personal experiences as a survivor of cervical cancer and HIV to advocate for quality healthcare. Her roles with the World Health Organization and other health organizations illustrate her commitment to improving HIV prevention and treatment globally.

Sarah Mkhabela

At 25 years old, Sarah Mkhabela is a rising advocate studying International Communication. Her involvement with the Advocacy for Prevention of HIV and AIDS (APHA) and various youth groups underscores the importance of youth voices in shaping HIV prevention initiatives.

Bridget Jjuuko

Bridget Jjuuko, Founder of ACTS101 Uganda, focuses on empowering young people through advocacy and training in HIV prevention and SRHR. Her leadership in creating platforms for adolescent girls and young women amplifies their voices in HIV research and prevention programs.

Jenna Rapues

Jenna Rapues, MPH, directs Gender Health SF, providing essential services for transgender and nonbinary communities. Her extensive experience in HIV prevention and community planning with SFDPH emphasizes the importance of inclusive and affirming healthcare services.

JoAnne Keatley

As Chair of the Innovative Response Globally for Trans Women and HIV (IRGT), JoAnne Keatley has significantly advanced transgender health services. Her work with the UCSF Center of Excellence for Transgender Health and various global health organizations highlights her impact on transgender HIV prevention.

Jana Villayzan

Jana Villayzan Aguilar, founder of Red Trans Peru, has dedicated over 20 years to advocating for trans women’s rights and HIV prevention in Latin America. Her research and community engagement efforts are critical in addressing HIV-related challenges faced by trans populations.

Martez Smith

Martez Smith focuses on addressing health disparities among racial, sexual, and gender minorities through community-driven interventions. His work with the Interdisciplinary Sexual Health and HIV Research Group at the University of Rochester underscores the importance of inclusive research practices.

Shawn Demmons

Shawn Demmons, Director at the Pacific AIDS Education & Training Center, provides essential training and technical assistance to healthcare organizations, enhancing their ability to serve transgender communities effectively. His dedication to transgender health education is pivotal in improving HIV prevention efforts.

Blossom Brown

Coach Blossom C. Brown advocates for LGBTQ+ sexual health through her work as a PrEP Navigator and Life Coach. Her public presence and dedication to providing access to PrEP highlight the importance of comprehensive sexual health education in HIV prevention.

Ms. Toi Washington-Reynolds

Ms. Toi Washington-Reynolds, a Hurricane Katrina survivor, leads initiatives like We Are More Coaching & Consulting, focusing on transgender equality and HIV prevention. Her work with various organizations reflects her lifelong commitment to community advocacy and support.

Luis Gutierrez-Mock

Luis Gutierrez-Mock, a qualitative researcher, specializes in transgender HIV prevention. His extensive background in community health education and current doctoral studies contribute to the advancement of inclusive HIV prevention strategies.

Charlie Peterson

Charlie Peterson manages Community Engagement & Clinical Research Education at Project WISH, promoting healthcare access for underserved communities. His efforts in linking community-based organizations with healthcare services are essential for effective HIV prevention.

Quinton Reynolds

Quinton Reynolds leads Game Changing Men, addressing stigmas and barriers for black transmasculine men. His holistic approach to community care and advocacy plays a significant role in advancing HIV prevention within marginalized communities.

The Impact of a Diverse Community Advisory Board

The diversity and expertise of the PURPOSE Studies Community Advisory Board ensure that HIV prevention initiatives are comprehensive, culturally sensitive, and effective. By incorporating the voices of leaders from various backgrounds and experiences, PURPOSE Studies can develop strategies that are both innovative and grounded in real-world needs.

Join the Movement for Effective HIV Prevention

The collaboration between PURPOSE Studies and its Community Advisory Board exemplifies the power of community-driven research in combating HIV globally. By supporting initiatives like PURPOSE Studies, you contribute to a future where HIV prevention is accessible, effective, and inclusive for all.

Ready to make an impact? Join our community today and support innovative solutions in HIV prevention and beyond.